Version 2.80

Status Information

Status
TRIAL

Term Description

This protocol includes self-administered questions from the Lupus Family Registry and Repository (LFRR). Respondents answer questions regarding their personal history and family history of various autoimmune and inflammatory disorders. The Infectious Diseases and Immunity Working Group notes that this instrument captures numerous symptoms and signs that are not highly characteristic of or peculiar to autoimmunity. In addition, certain conditions considered autoimmune may not be included, such as celiac disease and multiple sclerosis.

Reference Information

Type Source Reference
Citation Consensus measures for Phenotypes and Exposures National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). (2007). Lupus Family Registry and Repository (LFRR) Questionnaire-SLE. Pages 9-11.

Panel Hierarchy

Details for each LOINC in Panel LHC-Forms

LOINC Name R/O/C Cardinality Example UCUM Units
62892-5 PhenX - personal - family history of autoimmune - inflammatory disorders protocol 161401
Indent66434-2 Inflammatory disorder [PhenX] 1..7
Indent66500-0 Do you have this disorder [PhenX]
Indent66435-9 Family History - Disease
Indent67286-5 If yes, what is his/her relationship to you?
Indent54138-3 Name Family member

Fully-Specified Name

Component
PhenX - personal - family history of autoimmune - inflammatory disorders protocol 161401
Property
-
Time
Pt
System
^Patient
Scale
-
Method
PhenX

Additional Names

Long Common Name
PhenX - personal - family history of autoimmune - inflammatory disorders protocol 161401
Short Name
Pers fam hx autoimm inflamm proto

Survey Question

Source
PX161401

Basic Attributes

Class
PANEL.PHENX
Type
Clinical
First Released
Version 2.36
Last Updated
Version 2.66 (NAM)
Change Reason
Updated the PhenX ID from "PhenX.<ID>" to "PX<ID>" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.
Panel Type
Panel

Member of these Panels

LOINC Long Common Name
62863-6 PhenX domain - Infectious diseases and immunity

Language Variants Get Info

Tag Language Translation
el-GR Greek (Greece) PhenX - προσωπικό - οικογενειακό ιστορικό αυτοάνοσων - φλεγμονωδών διαταραχών πρωτόκολλο 161401:-:Pt:^Ασθενής:-:PhenX
Synonyms: PhenX - προσωπικό - οικογενειακό ιστορικό αυτοάνοσων - φλεγμονωδών διαταραχών πρωτόκολλο 161401
es-MX Spanish (Mexico) PhenX - personal - antecedentes familiares de autoinmunidad - protocolo de trastornos inflamatorios 161401:-:Punto temporal:^ Paciente:-:PhenX
it-IT Italian (Italy) PhenX - anamnesi personale e familiare di disturbi infiammatori autoimmuni, protocollo:-:Pt:^Paziente:-:PhenX
Synonyms: Panel PhenX paziente PhenX Punto nel tempo (episodio)
ru-RU Russian (Russian Federation) PhenX - личный - семейная история аутоиммунно-воспалительных расстройств протокол:-:ТчкВрм:^Пациент:-:PhenX
Synonyms: Точка во времени;Момент
zh-CN Chinese (China) PhenX - 个人 - 自身免疫性疾病与炎性疾病家族史方案 161401:-:时间点:^患者:-:PhenX
Synonyms: Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 Consensus measures for Phenotypes and eXposures;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 PhenX - 个人 - 自身免疫性疾病（自身免疫疾病、自身免疫病）与炎性疾病（炎症性疾病）家族史方案 161401;Consensus measures for Phenotypes and eXposures;PhenX;暴露;接触;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标 医嘱套餐 医嘱套餐类 医嘱套餐组 医嘱组 医嘱组.PhenX;组套（组合、医嘱组、套餐、套餐医嘱、医嘱套餐、组合申请、组合项目）.PhenX;Consensus measures for Phenotypes and eXposures;PhenX;表型与暴露共识指标;表现型与暴露共识指标;表型与暴露公认指标;PhenX 医嘱组 医嘱组合 医嘱组合类 医嘱组套 医嘱组套类 医嘱组类 医疗服务对象;客户;病人;病患;病号;超系统 - 病人 多重;多重型;多重标尺类型;多重精度类型 套餐 套餐医嘱 套餐医嘱组 套餐医嘱组类 实验室医嘱套餐 实验室医嘱套餐类 实验室医嘱组 实验室医嘱组合类 实验室医嘱组套 实验室医嘱组套类 实验室套餐医嘱组 实验室套餐医嘱组类 实验室检验项目医嘱组合类 实验室检验项目组合类 时刻;随机;随意;瞬间 检验医嘱组合类 检验项目医嘱组合类 检验项目组合类 组 组合 组合医嘱 组合类 组套

LOINC Terminology Service (API) using HL7® FHIR® Get Info

CodeSystem lookup
https://fhir.loinc.org/CodeSystem/$lookup?system=http://loinc.org&code=62892-5
Questionnaire definition
https://fhir.loinc.org/Questionnaire/?url=http://loinc.org/q/62892-5