Version 2.79

83129-7 Respondent type

Observation Required in Panel

Optional

Fully-Specified Name

Component
Respondent type
Property
Find
Time
Pt
System
^Patient
Scale
Nom
Method

Basic Attributes

Class
SURVEY.GNHLTH
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Example Answer List LL4174-0

Answer Code Score Answer ID
Self LA15312-4
Guardian LA26831-0

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82940-8 Speech

Observation Required in Panel

Required

Fully-Specified Name

Component
Speech
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Speech [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4091-6

Answer Code Score Answer ID
Normal speech processes 4 LA26567-0
Detectable speech disturbance 3 LA26568-8
Intelligible with repeating 2 LA26569-6
Speech combined with nonvocal communication 1 LA26570-4
Loss of useful speech 0 LA26571-2

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82941-6 Salivation

Observation Required in Panel

Required

Fully-Specified Name

Component
Salivation
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Salivation [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4170-8

Answer Code Score Answer ID
Normal Copyright http://snomed.info/sct ID:17621005 Normal (qualifier value) 4 LA6626-1
Slight but definite excess of saliva in mouth; may have nighttime drooling 3 LA23498-1
Moderately excessive saliva; may have minimal drooling 2 LA23499-9
Marked excess of saliva with some drooling 1 LA23500-4
Marked drooling, requires constant tissue or handkerchief 0 LA23501-2

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82942-4 Swallowing

Observation Required in Panel

Required

Fully-Specified Name

Component
Swallowing
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Swallowing [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4092-4

Answer Code Score Answer ID
Normal eating habits 4 LA26573-8
Early eating problems - occasional choking 3 LA26574-6
Dietary consistency changes 2 LA26575-3
Needs supplemental tube feeding 1 LA26576-1
NPO (exclusively parenteral or enteral feeding) 0 LA26577-9

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82943-2 Handwriting

Observation Required in Panel

Required

Fully-Specified Name

Component
Handwriting
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Handwriting [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4093-2

Answer Code Score Answer ID
Normal Copyright http://snomed.info/sct ID:17621005 Normal (qualifier value) 4 LA6626-1
Slow or sloppy, all words are legible 3 LA26578-7
Not all words are legible 2 LA26579-5
Able to grip pen but unable to write 1 LA26580-3
Unable to grip pen 0 LA26581-1

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82944-0 Cutting food and handling utensils (patients without gastronomy)

Condition for Inclusion

For patients without gastrostomy

Observation Required in Panel

Conditional

Fully-Specified Name

Component
Cutting food and handling utensils (patients without gastrostomy)
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Cutting food and handling utensils (patients without gastrostomy) [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4171-6

Answer Code Score Answer ID
Normal Copyright http://snomed.info/sct ID:17621005 Normal (qualifier value) 4 LA6626-1
Somewhat slow and clumsy, but no help needed 3 LA23511-1
Can cut most foods, although clumsy and slow; some help needed 2 LA23584-8
Food must be cut by someone, but can still feed slowly 1 LA23513-7
Needs to be fed 0 LA23514-5

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82945-7 Cutting food and handling utensils (alternate scale for patients with gastrostomy)?

Condition for Inclusion

For patients with gastrostomy

Observation Required in Panel

Conditional

Fully-Specified Name

Component
Cutting food and handling utensils (patients with gastrostomy)
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Cutting food and handling utensils (patients with gastrostomy) [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4094-0

Answer Code Score Answer ID
Normal Copyright http://snomed.info/sct ID:17621005 Normal (qualifier value) 4 LA6626-1
Clumsy but able to perform all manipulations independently 3 LA26584-5
Some help needed with closures and fasteners 2 LA26585-2
Provides minimal assistance to caregiver 1 LA26586-0
Unable to perform any aspect of task 0 LA26587-8

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82946-5 Dressing and hygiene

Observation Required in Panel

Required

Fully-Specified Name

Component
Dressing and hygiene
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Dressing and hygiene [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4095-7

Answer Code Score Answer ID
Normal function 4 LA25393-2
Independent and complete self-care with effort or decreased efficiency 3 LA26588-6
Intermittent assistance or substitute methods 2 LA26589-4
Needs attendant for self-care 1 LA26590-2
Total dependence 0 LA114-1

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82947-3 Turning in bed and adjusting bed clothes

Observation Required in Panel

Required

Fully-Specified Name

Component
Turning in bed and adjusting bed clothes
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Turning in bed and adjusting bed clothes [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4168-2

Answer Code Score Answer ID
Normal Copyright http://snomed.info/sct ID:17621005 Normal (qualifier value) 4 LA6626-1
Somewhat slow and clumsy, but no help needed 3 LA23511-1
Can turn alone or adjust sheets, but with great difficulty 2 LA23523-6
Can initiate, but not turn or adjust sheets alone 1 LA23524-4
Helpless 0 LA23525-1

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82948-1 Walking

Observation Required in Panel

Required

Fully-Specified Name

Component
Walking
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Walking [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4097-3

Answer Code Score Answer ID
Normal Copyright http://snomed.info/sct ID:17621005 Normal (qualifier value) 4 LA6626-1
Early ambulation difficulties 3 LA26591-0
Walks with assistance 2 LA26592-8
Nonambulatory functional movement 1 LA26593-6
No purposeful leg movement 0 LA26594-4

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82949-9 Climbing stairs

Observation Required in Panel

Required

Fully-Specified Name

Component
Climbing stairs
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Climbing stairs [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4099-9

Answer Code Score Answer ID
Normal Copyright http://snomed.info/sct ID:17621005 Normal (qualifier value) 4 LA6626-1
Slow 3 LA24898-1
Mild unsteadiness or fatigue 2 LA26595-1
Needs assistance 1 LA26596-9
Cannot do 0 LA13868-7

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82950-7 Dyspnea

Observation Required in Panel

Required

Fully-Specified Name

Component
Dyspnea
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Dyspnea [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4100-5

Answer Code Score Answer ID
None Copyright http://snomed.info/sct ID:260413007 None (qualifier value) 4 LA137-2
Occurs when walking 3 LA26597-7
Occurs with one or more of the following: eating, bathing, dressing (ADL) 2 LA26598-5
Occurs at rest, difficulty breathing when either sitting or lying 1 LA26599-3
Significant difficulty, considering using mechanical respiratory support 0 LA26600-9

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82951-5 Orthopnea

Observation Required in Panel

Required

Fully-Specified Name

Component
Orthopnea
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Orthopnea [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4101-3

Answer Code Score Answer ID
None Copyright http://snomed.info/sct ID:260413007 None (qualifier value) 4 LA137-2
Some difficulty sleeping at night due to shortness of breath, does not routinely use more than two pillows 3 LA26601-7
Needs extra pillows in order to sleep (more than two) 2 LA26602-5
Can only sleep sitting up 1 LA26603-3
Unable to sleep 0 LA15849-5

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82952-3 Respiratory insufficiency

Observation Required in Panel

Required

Fully-Specified Name

Component
Respiratory insufficiency
Property
Find
Time
Pt
System
^Patient
Scale
Ord
Method
ALSFRS-R

Long Common Name

Respiratory insufficiency [ALSFRS-R]

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Normative Answer List LL4102-1

Answer Code Score Answer ID
None Copyright http://snomed.info/sct ID:260413007 None (qualifier value) 4 LA137-2
Intermittent use of BiPAP 3 LA26604-1
Continuous use of BiPAP during the night 2 LA26605-8
Continuous use of BiPAP during the night and day 1 LA26606-6
Invasive mechanical ventilation by intubation or tracheostomy 0 LA26607-4

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

82953-1 Total score [ALSFRS-R]

Term Description

The 12 items in the ALSFRS-R are rated on a 5-point scale, 0 to 4, with a maximum score of 48 indicating the highest level of functioning. There is not information on the clinical interpretation of scores (i.e. a score in this range is classified as this level of functioning), but there is some evidence that scores are predictive of 9-month survival (90% for patients with scores over 30; 76% for patients with scores under 30). PMID: 10540002

Observation Required in Panel

Required

Fully-Specified Name

Component
Total score
Property
Score
Time
Pt
System
^Patient
Scale
Qn
Method
ALSFRS-R

Basic Attributes

Class
SURVEY.ALSFRSR
Type
Surveys
First Released
Version 2.58
Last Updated
Version 2.58 (ADD)
Order vs. Observation
Observation

Member of these Panels

LOINC Long Common Name
82954-9 Amyotrophic lateral sclerosis functional rating scale - revised [ALSFRS-R]

Example Units

Unit Source
{score} Example UCUM Units